The weather is definately a challenge: walking out of the hotel this morning we were met by SNOW! Well, indeed a fresh start of the day! We went to the Rockefeller University Hospital at the Out Patient Clinic, and were met by the very kind staff. Dr. Arleen Auerbach came to meet us a little later, and we had a good talk and chance to ask a lot of questions regarding the research project. Then Dr. Boulad came by, and we discussed a whole range of issues concerning FA and transplantation. Both doctors were very patient with our many questions, and we got a great deal of very useful information from the consultation. Sebastian was VERY shy and alert throughout the talks, and when we finally came to the blooddraw he gave an example of his hysterically scare of this exercise. So much so that Dr. Auerbach suggested lunch-break after his serious cry out. Great idea! We went for lunch and Sebastian was fine and cheerful quickly after leaving the clinic. We went back an hour later and finished up the paper-work and gave a bloodsample (Tue and I) as well.
The afternoon was used for napping - everyone was exhausted from the visit - and we did not go out again until 6 in the evening. The cold weather shortened the trip and having walked along a windy and very cold 3rd Avenue for a while, without having found any suitable dinner option, we just went back to the hotel and ordered some take-away 'Italian' food. This evening and the coming weeks will most probably be used to mentally evaluate the visit, as the whole FA journey is indeed a complicated and challenging one.
Tomorrow we are going on the Staten Island ferry despite the weather and probably walk around Soho and Greenwich Village. If Sebastian wakes up as early as the past few days, we will be the first in line for the early ferry ;-
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