Wednesday, January 17, 2007

January update

Sebastian is growing fast in these days - in all respects! He can make us hop and run, and it is often that we find ourselves wearing either the pirate outfit, the Bob the builder outfit or the paper-crown when we sing (meaning Tue or I, as Sebastian - 'naturally' - is the one to play the guitar!) on his command. I am getting suspicious that he has arranged some kind of candid camera ... His speech has developed at great speed over the past six months. A speech-therapist is going to visit him in his kindergarten tomorrow, and I am sure she will be surprised as well. He speeks all the time, and can repeat - and even sometimes understand - long and complicated words and sentences. How he has managed using his BAHA hearing aid I really do not understand. When Tue and I try it on, we need to concentrate a lot to distinguish all the noices that comes into it. However, having had it since he was only six months old, Sebastian has gotten used to it and has 'tuned' his hearing according to it. 

Although our winther this year seems very mild - no frost and no snow, so far - Sebastian already got the first infection after only 4 days in kindergarten. A cold, a little fever and a hoarse throath which made him sound like a dragon! He is now back on his feet, but we rest assured that having the pleasure of playing with the 7 other kids in his group in kindergarten has its price. We therefore try to limit his exposure to larger groups of people / children apart from this - without being too 'fanatic' of course.

We can read from Sebastians medical journal that the increased concentration of fetal hemoglobin is at 20% (normal level should be 4%). The doctors tell us not to worry about it - which we try not to do then. Our next appointments at hospital are not until March with a checkup on both growth-factors and his CBC. We hope everything will be fine and steady - and will of course keep you updated.

Thursday, January 4, 2007

Getting to like presents

We celebrated a wonderful christmas with family and friends, and jumped into the new year with our fingers crossed for another year of fun and happiness with Sebastian. 

After receiving presents both at home and with the kids in kindergarten EVERY DAY of December, and after going through yet another huge pile of wrapped toys on christmas eve, Sebastian finally started to speak of presents from santa with a certain eagerness in his voice. Up until the 24th of December he would keep saying 'afraid' when we mentioned the nice man with the big, white beard and his bag full of presents. This has now changed. We went to Uncle Thomas' birthday on the 1st of January (poor Thomas ...) and Sebastian was very keen to open Thomas' present. In other words: it is now getting really fun to spoil him even more than we have already done!

Through a research project in New York we now have the oppotunity to get more insight on Sebastians FA situation. It takes 'only' a bloodsample so far, which seems easy. However, it turns out that quite a few bloodsamples has been waiting way too long on their way through American customs, and when they finally reached the researchers they were useless. Our hematologist here in Denmark therefore recommended us to take Sebastian to New York for the bloodsample. Therefore we have started planning a trip to New York, probably in April. We will of course use this oppotunity to take some holidays, visit friends and go sightseeing as well. If you have any suggestions for things to do with an almost 3 year old boy in the New York / Washington area you are most welcome to mail your suggestions to us (make a comment on this blog).