We spoke to Sebastians hematologist today and he was not concerned with the increase in the HbF levels. It is quite common in children with FA actually - why this is so science does not yet know for sure.
He told us that he does not use the level of HbF as a meassure of or sign of leukeamia. What is crucial is the CBC-results and so far Sebastian is doing fine. We are of course very relieved.
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